Bharat in BetaAccessible health-record access and consent
Source
- Endiya Partners, National Health Stack opportunities (opens in a new tab)Digital divide; Rights of access to sensitive dataPublished: 24 Jul 2019
The idea
Address literacy and usability barriers alongside privacy-aware information sharing.
Why this is interesting
- The source flags two barriers: older and lower-income people may lack the access or literacy to use their own records, and sensitive data needs clear rules on who may see it. Consent works only when the person granting it understands what they are agreeing to.
- The source identifies an opportunity area rather than a validated customer problem. A useful first step is to choose one actor, workflow and measurable failure.
Possible starting points
Assisted record access
Equip a trusted intermediary, such as a pharmacist, health worker or family member, to help patients view and share records with explicit, recorded consent.
Consent people can understand
Design consent screens and voice prompts in Indian languages that explain who will see a record, for what purpose and for how long.
Questions to answer
- How can assisted access avoid giving the intermediary more control over the record than the patient intended?
- Can a person with limited literacy withdraw consent as easily as they granted it?